Frameworks of Choice: Predictive and Genetic Testing in Asia by Margaret Sleeboom-Faulkner

By Margaret Sleeboom-Faulkner

The 1st research of its style in English, Frameworks of selection offers a entire evaluate of predictive and genetic checking out in China, Japan, India, and Sri Lanka. the quantity sheds mild at the assets on hand in each one of those international locations; analyzes the social, political, and financial backgrounds of these settling on or making a choice on to not endure trying out; and discusses genetic trying out relating to genetic discrimination, biomedical exploitation, the distribution of overall healthiness care assets, and nationalism.

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Sample text

Though norms may differ, the desire to have a healthy and normal baby is universal. Every pregnant woman/couple/family wants a good reproductive outcome and the state wants a healthy population; in this sense they share a common goal. While some believe that genetic testing offers new possibilities for informed decision-making to (prospective) parents and consumers, others fear social pressure, marginalisation and stigmatisation and some form of eugenics as a consequence of its application. The term ‘eugenics’ comes from the Greek eugenes for ‘good birth’.

In India, over 25 million births occur annually. The infant and child mortality rate is very high, and infectious diseases are still the primary cause. Geneticists argue, however, that India is undergoing an epidemiological transition: many neonatal infections are better controlled today, which means that over time, the proportion of perinatal mortality attributable to birth defects has increased. If the incidence of birth defects is assumed to be 2 per cent, then 500,000 babies are born with some form of birth defect every year in India (Verma & Bijarnia 2002).

However, influential religious conservatism is not the only backdrop against which this dilemma is being played out. Marketisation of medical services and a concomitant growth of consumerist attitudes towards health have created expectations of greater freedom of choice, and not least when it comes to questions of reproduction. In the next section, I turn to a consideration of how these public and highly contentious dilemmas play out in the lives of those faced with significant reproductive dilemmas.

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